Wednesday, January 9, 2013

Online forums: *shrug*

In the interest of full disclosure, I'm a big believer in the Internet. My presence is very visible in this blog, on Facebook, Twitter and LinkedIn - not much into Pinterest as of yet. I need some form of 3D life. And of course, as I've spoken of many times, my immersion in Bo Bice's fan club/community has been life altering. Used correctly and responsibly, online communities bring like-minded people together and make them feel supported and understood. My wide circle of friends and family are all over the globe and I'm so grateful to social media for helping me stay in touch at the click of a mouse.

So it may seem odd that I am a late bloomer when it comes to online support systems meant for bariatric patients.

Henry Ford Hospital gives each of their bariatric patients a Big Blue Binder full of answers to just about any question you could think of and I studied it carefully. Maybe I felt that was enough? I joined a Yahoo group for Henry Ford patients but wasn't a huge presence there. Through it, I learned of an in-person support group nearby and went to one meeting a few weeks after my surgery in July, 2009. There were two other people and it was kind of...empty and strange. While one person present educated me about an online message board called Obesity Help (OH) and pointed me in the direction of a fantastic blog called The World According to Eggface, I didn't go back.

I created an account at OH but again...didn't post much. I can't remember if I ever posted at all. There was some support there and good information, but everyone seemed to already know each other and I didn't know where to start. There also seemed to be a fair amount of cattiness, judgment, cliques and "inside jokes" (which I hate). So I just concentrated on this blog and my Big Blue Binder.

Through Facebook, I found Melting Mama and her Bariatric Bad Girls Club (BBGC). Or rather, she found me (thanks, Beth) when she requested my friendship after reading my brusque (hey, I gotta be me) response to a post from a so-called "leader" in the bariatric community. That person is now finished and most of us couldn't be happier. Through BBGC, I found the Community of Bariatric Patients of Southern Ontario and the Cambridge Coffee Crew (CCC...are you keeping up with the acronyms?), the wonderful bunch of women I am proud to call my sisters following this twisted path of health. I went to my first meeting in June of last year, a week before my 3rd "surgiversary" or what I like to call my Rebirth-day.

I was surprised to find people at CCC and BBGC who were months pre-op. Some haven't even got their surgery date scheduled yet. Looking back, I wonder how different my journey would've been if I'd had this support system. Luckily, success came to me despite it. My cheerleaders have been all of you, as well as a wonderful system of family and friends. But it's true I had no one who had actually gone through this and knew what I was thinking and feeling. Support is so very important and you can never have too much.

So I am envious of these people in some ways. Not so much in others. I still don't participate/post much in online forums because I still find so much judgement there. You know what they say about opinions, right? It doesn't matter what you're doing, someone will tell you it's wrong or you're not doing it as well as they are. Most of the time it's in a passive-aggressive way, sometimes it shows outright hostility. Then someone chimes in with what should be the Bariatric Life Principal, "we are all different", trying to calm things down. I dunno, it's tiring to me and I don't have time for the drama. If someone wants to eat a certain thing or take a certain brand of vitamins, don't judge. You know what The Beatles say - let it be. Words of wisdom and all...

Bullshit is everywhere and I suppose it's our job to duck and cover when we deem it necessary. Some people love OH and the online bariatric community, and that's great. Whatever works for them. I'm pretty sensitive so maybe it's just me. But I will stick with my CCC girls - even though no group is perfect - and this blog, all of you. Add CCC, my amazing husband and the Big Blue Binder to the mix and I think this is going to be a very good year for success!

Monday, January 7, 2013

Let's finish it

Ah, the excess skin issue. It doesn't go away for those of us who have lost massive amounts of weight.

Recently, an articleappeared in an area newspaper about a woman who lost weight successfully with weight-loss surgery but felt she needed to have the excess skin removed from her abdomen to feel "done". And she believes OHIP (Ontario Health Insurance Plan) should pay for it.

I agree on both counts.

Ontario does cover a surgery called a panniculectomy under extenuating circumstances. "The pannus should hang below the level of the groin/pubis to qualify. In addition, the patient must have significant pain, chronic skin breakdown and recurrent infections and if the surgery is related to weight loss, the patient’s weight must be stable for at least six months." Ok. I get that.

I believe my excess skin keeps me from feeling like a success. I still have huge handfuls of skin around my stomach and it's really hard to feel like I've lost weight successfully sometimes. The reflection in the mirror is just "meh".

There are things that haven't changed for me, even though I've lost well over 200 pounds. I get in the shower and still have to lift up my stomach, make sure I get everything clean in the folds of flesh. This is reality, and it's no different than the way I showered when I was 444 pounds. Actually, there are MORE folds of flesh to worry about now, and my hanging stomach is heavier.

I still have to shop for longer tops to cover it up. It still hinders my intimate relationship with my husband. I have to buy a bigger size jean to get it over the stomach (stuffing it inside), then cinch a belt around my fairly small waist in order to be semi-comfortable....but I guess the bright side is at least I can wear jeans now!

I really do try to be one of those people who say "Screw the excess skin. I'm healthy now and that's what I focus on." But it's hard. It's a true psychological barrier I wasn't prepared for when I started to lose weight.

Not long ago, a "friend" told me "his wife said" if I'd lost weight "naturally", I wouldn't have excess skin. Thanks! While I know that statement is complete bullshit, it's just more guilt that I didn't do this the right way and the way I abused my body is something I chose and can't change.

Would I qualify for the panniculectomy? Probably. Friends who have been through the process tell me I would, without question. But I feel like I'm not small enough for it. I've gained a little bit over the past year and want to get that weight off before I try. That's all my fault, I realize that.

So the goal this year is to get that damn panniculectomy, at least. I think OHIP should pay for the full tummy tuck, but it is what it is. I need to get this skin off because it's starting to break me down psychologically, and is getting in the way of my maintenance. I can't let that happen.